Participate in Research
The Sinneave Family Foundation wishes to share information about research being done in the field of autism, and encourages others who have been impacted personally or professionally to take part. Changes in policy happen through research and through voices of whom it has impacted.
The Sinneave Family Foundation operating out of The Ability Hub does not endorse or guarantee the exhaustive, complete, accurate or up-to-date nature of the information provided and does not assume any risk for the outcome of the information provided.
Current Research Studies
Participants for a Study on Well-Being and Autism are Needed
This research is being conducted through the University of Calgary, Educational Research. We are looking for participants who have characteristics of high functioning autism and are between the ages of 16-35 to share their ideas and experiences relating to well-being through a series of email conversations with a researcher. Email conversations are intended to last for approximately 6-8 weeks and are flexible to meet the schedule of participants. A better understanding of how adults with autism experience well-being may provide valuable insight into educational planning for young people on the spectrum. This research has been approved by the Conjoint Faculties Research Ethics Board at the University of Calgary.
We are seeking participants between 16-35 who have characteristics of high functioning autism, live in Alberta and have access to a computer and Internet.
To participate contact, Janice Beler at (403) 394-4779 or email: email@example.com
Research on Using Geometric Patterns of the Face as a Diagnostic Tool for Autism Spectrum Disorder
The University of Calgary is the Canadian participant in an international study using 3D technology to assist in the diagnosis of genetic syndromes. Using a 3D camera and software, images of faces can be analyzed to find consistent patterns unique to people with a particular syndrome. Presently, we are attempting to identify unique geometric facial patterns indicating placement on the Autism spectrum. We are asking for participants, those diagnosed with ASD and their family members, to sit for a 3D photograph which involves a single flash. The photograph takes 5-10 minutes. The facial images are made available to the international team but personal information is protected.
To participate please email firstname.lastname@example.org or call Brenda McInnes at (403) 955-7028.
Research on the Experiences of Fathers of Children with Autism
Dr. Bonnie Lashewicz, Beth Parrott and student researchers from the Department of Community Health Sciences at the University of Calgary want to learn about the experiences of fathers of children with Autism. We are especially interested in hearing from fathers of children with Autism who have immigrated to Canada and/or speak English as a second language, and/or are working extra hours to support their families. Fathers who volunteer for our study will participate in a face to face interview with a researcher at a time and location that works best for the father. The interview will be like a conversation. Fathers are welcome to bring a family member or friend to the interview for support and/or to translate.
The researcher will provide a translator if needed. Fathers will also receive a 50 dollar gift card as a thanks for taking part in the interview.
If you, or someone you know, is interested in our study please contact Kritika Sharma or Amanda Lo for further information at: (403) 700-7510 or email@example.com, and (403) 608-3690 or firstname.lastname@example.org.
Research on Voices of Adults with Developmental Disabilities in Daily Interactions with Family
Dr. Lashewicz and her research team have been focused on “hearing” the voices of adults with developmental disabilities and are concerned that the voices of these adults are under-represented in research or overshadowed by the clearer voices of others.
The purpose of this study is to examine how adults with developmental disabilities communicate with their parents or siblings present. The goal is to understand ways to help adults with developmental disabilities direct their own lives.
Dr. Lashewicz and her research team are looking for adults with developmental disabilities to take part in 3 interviews with one or more of their caregiving parents and/or siblings. Interviews will be conversations about interests, activities and support needs of the adult with a disability and the role of family caregivers.
If you, or someone you know is interested in this project/would like further information, please contact Camille Duque: Project Coordinator at 403 710 2361 email@example.com
Examining Labour Force Participation among Adults with High-Functioning Autism – The Ability Hub
Some adults with autism spectrum disorders (ASD) have difficulty finding and keeping a job. Finding and sustaining employment for adults with ASD can involve various barriers.
The purpose of this study is to investigate the work-related experiences of adults with ASD. To understand these experiences, we invite the following to share their experiences in an interview, (1) adults (aged 18-65 years) diagnosed with ASD, (2) caregivers, (3) service providers and (4) employers who have worked with adults with ASD. This study is estimated to be around 30-45 minutes. Free parking is included. A $20 gift card is given as a thank you for participant’s time.
Please contact Theresa Jubenville, firstname.lastname@example.org, (403) 210-5000 [ext. 2003] if you are interested.
An exploratory examination of the transition to adulthood in Autism Spectrum Disorder – The Ability Hub
The transition from adolescence to adulthood can have possible difficulties that relate to social, health care, employment and educational needs. A successful transition relies on the availability of appropriate resources, skilled service providers and coordination across services in order to meet the needs of individuals with autism spectrum disorder (ASD).
We are interested in investigating the transition to adulthood, particularly focusing on the resources and systems that are needed for this transition to be successful. We are currently seeking participants with autism spectrum disorder from ages 16-19 years to take part in a short interview regarding his/her experiences of transitioning into adulthood. Free parking is included. A $25 gift card is given as a thank you for the participant’s time.
Please contact Theresa Jubenville at email@example.com or 403-210-5000 (ext. 2003) if you’re interested in participating.
Finding out what matters: Self-determination in young adults with Autism Spectrum Disorders – McGill University
The purpose of this study is to better understand the self-determination of young adults (between 18 and 30 years old) with high functioning ASD in Canada. Self-determination is particularly important in adulthood and in helping individuals successfully complete high school, gain employment, postsecondary education, independent living, participate in the community, and experience personal and social relationships. This information is invaluable to our research and will help us understand the lives of young adults with ASD.
Interested individuals with ASD will be asked to complete an anonymous online survey that will take approximately 30 to 45 minutes to complete. As a small token of appreciation, the researcher is offering a $15 gift certificate to participants who complete the full survey.